Brooke Eby has a great sense of humor as she navigates her life with ALS.
Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease or motor neurone, is a degenerative neurodegenerative condition that results in a progressive loss of muscle control. Eby was finally diagnosed in March of last year, at age 33, after a four-year search for answers. Since then, she’s taken to social media in order to share her story.
Brooke Eby on what it’s really like to live with ALS
Eby, who initially described the diagnosis as “shocking”, says that, after processing it and putting it into perspective, she thought, “Maybe it’s not that bad that there is a name for it. For the past four years, I have been living with only this one thing in a million that I could never relate to or connect with anyone about.”
Eby admits that she too struggled to gain confidence after being diagnosed, because she worried about the way people would see her, in particular those who knew her before. Her family and friends’ quick acceptance helped her to learn how to laugh at the situation and share it “on a bigger scale, while still having fun.”
“I think that people are hesitant to speak about death or serious diagnoses. But I figure that if…